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A Comparison of Attitudes, Knowledge, Expectation, and Willingness of Participating toward Precision Medicine Cohort Study in Cancer Patients and in General Populations and Medical Professionals

Abstract

Objective: The purpose of this study is to compare differences of knowledge, attitude and willingness toward precision medicine among three groups in Korea—cancer patients, general population and medical professionals.

Methods: From November 2016 to February 2017, We used a questionnaire consisting of 23 questions was made by the National Cancer Center and Samsung Seoul Hospital Respectively, to compare the experience, knowledge, attitude and willingness toward precision medicine.

Results: A total of 1,500 cancer patients, 1,496 general populations and 364 medical professionals were included in the study. Both cancer patients and the general public had little experience with prior medical care, and few people correctly understood it. All three groups had expectations and concerns about overall precision medicine, but there were factors that participants were interested in, depending on the characteristics of the groups. Cancer patients were highly willing to participate in research and sharing information, but they showed a tendency to avoid paying for precision medicine. Exposure of the concept was found to be an important factor affecting participation in research in all three groups.

Conclusions: In order to maximize participation in precision medicine through this study, appropriate information should be provided for each group’s expectations or concerns. Also, it is necessary to secure channels that are as accessible as possible, and periodical publicity should be provided. For this, assistance and support at the national level are needed.

 

Mangyeong Lee
PhD student, Samsung Advanced Institute for Health Sciences & Technology (SAIHST), The Republic of Korea

 

  • Background
    He is a mainly interested in humans. He studied humans from a biological point of view, when he studied genetic engineering in his undergraduate. But he had changed his career path, because his main research interest more focused on health relying on human behavior rather than biological phenomenon. After graduation, he began to study Human-Computer Interaction (HCI) in digital health and he has earned a master degree at Sungkyunkwan Univ, Korea.
    He then is studying ‘digital health literacy’ and ‘patient reported outcomes(PRO)’ as a PhD student at Samsung Advanced Institute for Health Sciences & Technology(SAIHST) in Sungkyunkwan Univ, Korea.
  • Education
    – BS in Genetic engineering, Kyung-Hee University, Korea, 2015
    – MS in Human ICT Convergence, College of Information and Communication Engineering, Sungkyunkwan University, Korea, 2017PhD student in Digital Health, Samsung Advanced Institute for Health
    – Sciences & Technology (SAIHST), Sungkyunkwan University, Korea, 2017~
  • Selected Publications
    – Noh, W., Lee, M., Cheon, H., Kim, J., Lee, K., & Cho, J. (2016, September). TakeOut: drawing application using distributed user interface for being close to real experience. In Proceedings of the 2016 ACM International Joint Conference on Pervasive and Ubiquitous Computing: Adjunct (pp. 173-176). ACM.
    – Lee, M., LEE, K. J., Lee, T., Bae, B. C., & Cho, J. D. (2016, September). An eating speed guide system using a wristband and tabletop unit. In Proceedings of the 2016 ACM International Joint Conference on Pervasive and Ubiquitous Computing: Adjunct (pp. 121-124). ACM.
    – Kim, J., Lee, K. J., Lee, M., Lee, N., Bae, B. C., Lee, G., … & Cho, J. D. (2016, May). Slowee: A Smart Eating-Speed Guide System with Light and Vibration Feedback. In Proceedings of the 2016 CHI Conference Extended Abstracts on Human Factors in Computing Systems (pp. 2563-2569). ACM.
    – Lee, M., Kim, J., Lee, K., & Cho, J. (2016, February). CIRCLE ROUND: Flexible Communication using Multiple Access at Face-to-Face Meeting. In Proceedings of the 19th ACM Conference on Computer Supported Cooperative Work and Social Computing Companion (pp. 65-68). ACM.